Walk-a-thon and BBQ on Saturday, June 7 at Assiniboine Park
The Canadian Celiac Association – Manitoba Chapter is inviting Manitobans to lace up and speak out as part of a growing movement to support those living with celiac disease.
As part of Celiac Awareness Month, the organization is hosting a Walk-a-thon and gluten-free BBQ on Saturday, June 7 at Assiniboine Park. The event aims to raise awareness about celiac disease—an autoimmune condition triggered by the ingestion of gluten—and to foster a stronger sense of community among those navigating the challenges of a strict gluten-free lifestyle.
Chelsea Lukawy, president of the Manitoba chapter, says the day is all about connection, education and visibility.
“From the outside, you may look fine,” said Lukawy. “But even the smallest amount of gluten can cause significant harm internally. That’s why we’re walking—to make this disease more visible and understood.”
While celiac disease isn’t typically referred to as an “invisible illness” in clinical contexts, many of its effects—such as internal inflammation, fatigue, or nutrient deficiencies—aren’t always immediately apparent to others. At the same time, over 300 known symptoms can manifest in highly visible ways, including rashes, digestive issues, and delayed growth.
Lukawy knows the realities of living with celiac disease all too well. She was diagnosed at age 12 after struggling with digestive issues, extreme fatigue, sore joints and delayed growth.
“I remember constantly feeling sick and so tired I couldn’t keep up with my friends at school,” she said. “At first, doctors weren’t sure what was wrong. It wasn’t until celiac disease was suggested that things started to make sense.”
Celiac disease causes the body’s immune system to attack the small intestine when gluten—a protein found in wheat, barley, and rye—is consumed. The resulting inflammation damages the intestinal lining and interferes with nutrient absorption, leading to symptoms that can range from stomach pain and brain fog to infertility, osteoporosis, and neurological problems.
The only treatment is a strict, lifelong gluten-free diet, and even trace amounts of gluten—such as crumbs from shared cutting boards or toasters—can be enough to cause damage.
“When I was diagnosed and started the diet, it was honestly a relief,” Lukawy said. “I finally had energy again. The headaches, the joint pain—it all started to go away. Giving up favourite foods wasn’t easy, but feeling better made it worth it.”
Navigating life with celiac disease, however, comes with daily challenges. Eating out, travelling or attending social events requires constant vigilance.
“You learn to ask questions and advocate for yourself. I always call ahead at restaurants and ask if they use a dedicated fryer, separate prep area, or fresh gloves,” said Lukawy. “I’ve learned to never assume that ‘gluten-free’ on a menu means ‘safe for celiac.’”
Lukawy says the misconception that celiac is simply a dietary preference continues to be a major hurdle. Gluten-free diets have risen in popularity, but for people with celiac disease, the consequences of cross-contamination or misinformation can be serious.
“People sometimes think you’re being picky or dramatic,” she said. “But this isn’t a trend. Even a crumb of gluten can set off a severe reaction. For some people, that means days of illness.”
The Manitoba Chapter of the Canadian Celiac Association is working hard to educate the public and support those newly diagnosed. The organization holds bimonthly support meetings, runs workshops, and advocates for improved understanding of celiac disease across sectors, from healthcare to hospitality.
One of their newer initiatives, Kids’ Corner, creates space for young children with celiac to learn about their diagnosis and connect with others who share their experience.
“When I was diagnosed as a kid, I felt very alone,” said Lukawy. “Programs like this can make a huge difference—they show kids that they’re not the only ones and help build confidence early on.”
The June 7 walk and BBQ at Assiniboine Park will feature a short, accessible walking route, a safe and certified gluten-free barbecue, children’s activities, and resource tables with information for the public. Everyone is encouraged to wear green—the official colour of celiac awareness.
The event caps off a month of advocacy that has included radio campaigns, public interviews, and outreach efforts throughout Manitoba.
“Celiac Awareness Month is our chance to amplify real stories from real people,” Lukawy said. “There are still so many who are undiagnosed or struggling silently. Awareness can change that.”
She said it’s especially important for restaurants, schools, and workplaces to offer safe, gluten-free options—not just for convenience, but for inclusion and safety.
“Food is such a big part of how we connect and celebrate,” she said. “When you can’t participate safely, it’s isolating. Having true gluten-free options available means we can be part of those moments without fear.”
Above all, Lukawy hopes the walk and BBQ sends a message: those with celiac disease deserve to be heard, respected, and supported.
“To anyone living with celiac, especially those newly diagnosed: you’re not alone, and you’re not being ‘too much’ by asking questions or taking precautions,” she said. “You’re taking care of yourself—and you deserve to feel safe.”
For more information about the June 7 Walk-a-thon and BBQ, or to learn more about the Canadian Celiac Association – Manitoba Chapter’s support programs, visit www.manitobaceliac.com or email manitobaccachapter@gmail.com.
